Pathfinder Partner Organizations

Pathfinder Partner Organizations (PPOs) are formal and informal networks serving a country, city, region, team, or hospital.  PPOs are expected to coordinate outreach and referral efforts with the Pathfinder Outreach Network Program Director and the Executive Director of AmeriFace.


  • Informal or formal organization
  • Representative individuals/families are registered Pathfinders and listed in our national database
  • Website visitors must be able to easily navigate to an AmeriFace and/or related program links on the organization’s website
  • Periodic reports of organization activities will be made at the Pathfinder program website (file your report here)

PPOs will be awarded special status on the AmeriFace and/or related program websites.  They will also be awarded use of the PPO logo (in development) for their website(s), letterhead, business cards, etc.  There is no PPO membership fee.

Become a Pathfinder Partner Organization!

AmeriFace recognizes CarePages as a Pathfinder Partner Organization,
serving a variety of medical support communities, including our member families.

Pathfinder Partner Organizations (PPOs) are listed alphabetically.

AboutFace International
123 Edward St., Suite 1003
Toronto, ON, Canada M5G 1E2
Phone:  (416) 597-2229 or 1-800-665-FACE
Fax:  (416) 597-8494

American Cleft Palate-Craniofacial Association (ACPA)
1504 East Franklin St., Suite 102
Chapel Hill, NC 27514-2820
Phone:  (919) 933-9044
Fax:  (919) 933-9604

Apert International
Post Office Box 2571
Columbia, SC 29202
Phone:  (803) 732-2372
E-mail Founders Don and Cathie Sears

Children's Craniofacial Association
13140 Coit Road, Suite 307
Dallas, TX 75240
Phone:  (800) 535-3643 or (214) 570-9099

Cleft Palate Foundation (CPF)
1504 East Franklin St., Suite 102
Chapel Hill, NC 27514-2820
CLEFTLINE: 1-800-24-CLEFT (24 hours, toll free)

Dylan's Smile, Inc.
533 Turnberry Drive
Norwalk, IA  50211
Phone:  (515) 306-2085

FACES: The National Craniofacial Association
P. O. Box 11082
Chattanooga, TN 37401
Phone:  (800) 332-2373

Forward Face
317 East 34th Street, Suite 901A
New York, NY 10016
Phone:  (212) 684-5860
Fax:  (212) 684-5864

Foundation for Faces of Children
258 Harvard St., # 367
Brookline, MA 02446

Foundation for Nager and Miller Syndromes (FNMS)
13210 SE 342nd Street
Auburn, WA 98092
Phone:  1-800-507-FNMS
DeDe Van Quill, Director

Freeman Sheldon Parent Support Group
509 Northmont Way
Salt Lake City, UT 84103-3324
Phone:  (801) 364-7060

Friendly Faces
Atlanta, GA

Grind For Life
2023 N. Atlantic Ave. #236
Cocoa Beach, FL  32931
Phone:  (561) 252-3839

Jorge Posada Foundation for Craniosynostosis
P.O. Box 2038
New York, NY 10159-2038
Phone:  (866) 823-8005

Let's Face It
University of Michigan
School of Dentistry, Dentistry Library
1011 N. University
Ann Arbor, MI 48109-1078

Lucky Smiles
Binghamton, NY 13905
Phone: (607) 797-0903 or

Michigan Cleft Network
Phone:  1-888-MICLEFT

Moebius Syndrome Foundation
PO Box 147
Pilot Grove, MO 65276
Phone:  (660) 834-3406
Vicki McCarrell

National Foundation for Ectodermal Dysplasias
410 E. Main Street, P.O. Box 114
Mascoutah, IL  62258-0114
Phone:  (618) 566-2020
Fax:  (618) 566-4718

Parry Romberg Foundation
526 - 14th Street
Windsor, CO 80550

Pierre Robin Network
3604 Biscayne
Quincy, IL 62305

Spokane Smiles
Kari Almeida - (509) 251-8387
Lori Ullman - (509) 999-2195

Stickler Involved People
15 Angelina Drive
Augusta, KS 67010
Phone:  (316) 775-2993

The Sturge-Weber Foundation
PO Box 418
Mt. Freedom, NJ 07970-0418
Phone:  (800) 627-5482 or (973) 895-4445
Fax:  (973) 895-4846

Virginia Smiles
P.O. Box 2891
Fairfax, VA 22031-2891

Goldenhar Syndrome Support Network
Making a world of difference in a world of facial differences...
A program of ameriface
The Goldenhar Syndrome Support Network is a program of
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