The Journey

Thanks to Rickie Gill, Will Eiserman, Kathy Kapp-Simon and Ann Ross for their efforts in developing The Journey.  Each of the following sections can be viewed separately or in sequence with the links provided on each page.

Your child was just born with a facial difference
Finding the right team of professionals to care for your child
Preparing your child for surgery
Meeting friends and family for the first time
How and when do you talk with your child about his or her condition
How do you make sure your child is doing well in all areas of development?
Your child is starting preschool
Your child is going to school

Understanding Medical Procedures
The following links are from the Starlight Starbright website and will help you and your child understand these topics and reduce anxiety about the procedures.

Medical Imaging: Welcome to the Radiology Center
Understanding Our Incredible Blood
Spotlight on IVs

Additional Articles and Publications
Advice for Parents: Helping Children to Tell Peers About Their Difference
Starlight Starbright - Back to School for Teens

Goldenhar Syndrome Support Network
Making a world of difference in a world of facial differences...
A program of ameriface
The Goldenhar Syndrome Support Network is a program of
© ameriface, PO Box 751112, Las Vegas, NV 89136-1112
Toll-free:  (888) 486-1209  Fax:  (702) 341-5351
DisclaimerPrivacy Policy